Research and Orphan Diseases

See the Invisible: Living with an Invisible or Rare Disease

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3+ y ago 43:16

MP3•Pagina principale dell'episodio

While I did not expect to do a topic related to Covid so quickly, while researching other topics, I did come across interesting articles regarding Orphan Diseases and how Covid has changed the outlook of research into these disorders. There was also an article about the cost of a rare disease in comparison to others.

EveryLife Foundation for Rare Diseases

Cost of Rare Diseases in US? Nearly $1 Trillion in 2019, Study Finds (dravetsyndromenews.com)

How Covid-19 is changing rare diseases research - MedCity News

New Study Investigates the Number of Available Orphan Products, Generics and Biosimilars - NORD (National Organization for Rare Disorders) (rarediseases.org)

Definition of Orphan disease (medicinenet.com)

Orphan Drug Act of 1983 - Wikipedia

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