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The Confirmed Diagnosis, Initial Treatment, and Plan
Manage episode 297184322 series 2949757
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Autoimmune Encephalitis is a rare disease that has historically been very difficult to diagnose. It mostly affects young women and sometimes goes undiagnosed or misdiagnosed for years, often times being passed off as a psychological disorder or torrets syndrome. In Jillian's case, the doctors also had a hard time diagnosing her and it took about 6 months to get there. In this episode, host Jon Beerman is joined by Jillian Cash, Sarah Cash, and Jillian's grandfather Tom. They discuss the jounrey of getting to a fully confirmed diagnosis, her initial treatment plan, and the plan moving forward. Below are a few resources for additional information on Autoimmune Encephalitis:
International Autoimmune Encephalitis Society - https://autoimmune-encephalitis.org/
Brain On Fire (movie) - https://www.imdb.com/title/tt3704700/
Carmel Sound Lab (podcast production studio) - www.carmelsoundlab.com
If you have any questions or would like any additional information please email carmelsoundlab@gmail.com
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