Podcast by Jerry Cahill
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Podcast by Jerry Unplugged: A Cystic Fibrosis Podcast
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A dynamic podcast exploring the different experiences people with cystic fibrosis may face during their lives. Gunnar Esiason joins Tiffany Rich and Lea Faraone, otherwise known as the Salty Cysters, to talk about the in's and out's of cystic fibrosis from some of the anxieties and stresses that patients face to some of the lighter sides of the disease. Breathe In: A Cystic Fibrosis Podcast aims to characterize the disease in a positive way while showcasing the challenges that people with cy ...
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When our son was diagnosed with Cystic Fibrosis at six months old we were shocked and devastated. From the first moment seeing his foggy little lungs, we knew this was gonna be a rollercoaster and we weren't wrong. What the CF! was born out of a curiosity to learn more, support others, and share experiences while we navigate our own CF journey. We want to tell the stories of others and answer the FAQ's that come along with a diagnosis. We'll seek the knowledge of experts and those living wit ...
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A dynamic Cystic Fibrosis Podcast, educating people on the different experiences and lives that CFers face. Discussing all sides of CF, including the fearful, the ambitious, the emotional and the challenging. A podcast that is purposely made to educate but more importantly comfort fellow CFers and support the CF community💛
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Ingrid chats to CFNZ Chief Executive, Lisa Burns. They discuss what CFNZ does for CFers and their families throughout their lives and what the organisation's plans are for the future to make sure no one is left behind now that Trikafta is funded. There's still no cure, and not everyone can take Trikafta, so CFNZ want all in the community to know th…
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Ingrid chats to Dustin Raynor, better known as professional wrestler Dustin Bozworth. Dustin shares his story living with cystic fibrosis from childhood, to pro wrestling, to reality TV on ‘Stone Cold’ Steve Austin’s Broken Skull. It’s an inspiring conversation and he’s a very unique and ambitious person. We’re proud to have spent time learning mor…
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Ingrid shares their journey during a recent hospital admission and Orson gives his views on the whole adventure--- Send in a voice message: https://podcasters.spotify.com/pod/show/what-the-cf-pod/message
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Episode 15: Bella Powell
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1:10:42
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Ingrid sits down with Bella Powell, a young woman with CF who was the first in New Zealand to get Trikafta thanks to the late Sir Bob Elliott – who gave her this gift of life during his final months by funding the drug for her. Following on from our last episode with Patrick Gower who broke the Trikafta story here in NZ, Bella shares her side of th…
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Ingrid sits down with the well-respected and much-loved New Zealand journalist Patrick Gower to talk about the part he played in highlighting the need for funding of Trikafta for New Zealanders living with Cystic Fibrosis. This is a highly emotive interview and Paddy was very generous with his time. He shares how his experience getting to know the …
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Ingrid chats with Helen Ulyatt, mother to an active 9-year-old CFer called Sophia. They chat about how she prepped for starting school and all the fears and worries surrounding this milestone, as well as managing trips to camp and hopes for the future. ZOONO DISCOUNT CODE INSIDE! Tune in to get your discount code to receive 2 x 50ml Zoono hand sani…
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We discuss the journey to diagnosis for our son Orson at six months old. From pregnancy and birth, tests, diagnosis and processing the news. It's emotionally a highly charged episode but we end up laughing quite a bit, which we're pleased to be able to do together through this crazy journey. We'd love to hear from you. You can leave a voice message…
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In this episode, Ian and I review the brilliant film Never Better and chat with its writer-director Julianne Fox. Julianne, who has CF herself, filmed Never Better in late 2020 and received great reviews when it played at film festivals. W#e chat about how the project got started, her life with CF and more. We hope you enjoy this episode of the pod…
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In this episode, Ian and I get to grips with life with a CF toddler. It's a general update on how CF affects our everyday life, plus a few tips on navigating a few milestones as your little CFer grows up. As always, we end up blowing off steam with many fits of giggles. We hope you end up finding some of this info useful regardless of our gaffs or …
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Most of the New Zealand CF community know Lizzie McKay, a 30-year-old person with CF who works for CFNZ as a Communications Coordinator. Her friendly and bubbly nature makes her easy to like but her story is not an easy one to hear as a mother of a little one with CF. In this episode, we discuss Lizzie's role at CFNZ and the organisation where she'…
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Chris Macleod is a Candian with CF who was one of Canada's first patients on Kalydeco ten years ago. He’s now 52 and has advocated for CF for many years. He’s also written a book called Beating The Odds: 11 Lessons to Overcome a Health Crisis and Lead a Resilient Life. We talk about his life with CF, his career as a Lawyer and how that's helped him…
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Welcome to Season 2 or What the CF! We're so happy to be back and ready to share lots of CF stories about treatment with you.If you're part of the CF community and not aware of Trikafta (or Kraftrio) then you've been living under a rock! This 'miracle' treatment isn't yet funded in New Zealand and we want that to change ASAP. Edward Lee is a 39-yea…
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Ingrid chats to Eilís Moroney, the author of 'Our Baby Has 65 Roses' and mum of a little person with CF - two-year-old AibhÍn, about diagnosis and how writing a book was her coping mechanism.Listen to the podcast for your chance to win a copy of the book, and email your answer to wtcfpod@gmail.com. You can also purchase the book here.Find out more …
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In Jerry’s latest podcast, we meet Beth Gerritsen – mother to Charlie, who has cystic fibrosis, and Willie, who does not. From raising her boys in the Virgin Islands to moving back to the states, she shares some insight into CF care in the VI, how it impacted Charlie’s health, and more. This video podcast was made possible through an unrestricted e…
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In his latest podcast, Jerry chatted with Charlie, 11 with CF, and his older brother Willie about the CF-sibling relationship. They talk about spending almost all of their time together, playing sports, their goals, and more. To his fellow CF patients, Charlie says, “Stay strong. Never give up. And always do your treatments.”This video podcast was …
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In the latest CF Podcast, we meet Griffin Taylor, a 15-year-old who loves lacrosse and squash, is on his school’s robotics team, and is his class’s treasurer. During quarantine, Griffin started The Salty Scholar, a tutoring service to assist with virtual learning. When he saw his mom – a teacher – go through the virtual learning process, he realize…
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Eddie, Henry and David are all parents of little CFers. Ian chats to these three dads about diagnosis, telling friends and family, and what NOT to say to a CF parent. Thanks again to our guests for sharing so candidly and we know it's going to help others in the community. For further info visit whatthecf.com. --- Send in a voice message: https://p…
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Trigger warning - this podcast discusses pregnancy termination following pre-natal testing. Ingrid chats with Genetic Counsellor Kelly Sullivan about all things genes when it comes to getting the Cystic Fibrosis initial diagnosis. Kelly explains what causes CF, what happens in your genetic counsellor meeting, and the options for couples wanting mor…
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In the latest CF Podcast, Jerry speaks with Dwight Cheu, CEO of ZephyRx, a home-based respiratory diagnostic testing and therapy that allows patients to actively manage and improve their own lung health through telehealth, video games, and virtual reality.Cheu describes the positives of the product: at-home testing capabilities, prevention of exten…
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Sophie, Kayla and Jessica are all mums of little CFers born during the pandemic. Ingrid chats to these mums about diagnosis, telling friends and family and what NOT to say to a CF parent. --- Send in a voice message: https://podcasters.spotify.com/pod/show/what-the-cf-pod/message
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The You Cannot Fail Rare Disease podcast series was created so that the Boomer Esiason Foundation can shine a spotlight on other people and organizations in the rare disease community. In the second episode, Swapna Kakani discusses dealing with post-transplant lymphoproliferative disorder after her small intestine organ transplant. In June 2014, af…
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Ingrid chats to Sue Lovelock, Southern Fieldworker for Cystic Fibrosis New Zealand. Sue has worked as a fieldworker for 14 years and knows all too well the pain and fear of diagnosis, the heartbreak of the disease and the positive and happy lives that people with CF can live in NZ. Thanks so much to Sue for such a great chat. Find out more about CF…
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The You Cannot Fail Rare Disease podcast series was created so that the Boomer Esiason Foundation can shine a spotlight on other people and organizations in the rare disease community.In the first episode, Swapna Kakani shares her story about being born with a rare disease, short bowel syndrome and later developing rare PTLD (Post-transplant lympho…
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“I believe in enjoying life and living it to the fullest, having fun, and just enjoying time.”Brayden Walsh, a 16-year-old living with CF, joins Jerry Cahill’s CF Podcast to share his experience as one of the 10% of patients without modulators available for treatment. Even though he deals with a number of other illnesses on top of CF, Brayden does …
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We discuss the journey to diagnosis for our son Orson at six months old. From pregnancy and birth, tests, diagnosis and processing the news. It's emotionally a highly charged episode but we end up laughing quite a bit which we're pleased to be able to do together through this crazy journey. We'd love to hear from you. You can leave a voice message …
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Check out the trailer for the very first episode of What The CF! A Cystic Fibrosis Podcast - COMING SOON - episode 1, we chat about our journey to getting a diagnosis for our son - just prior to the first lockdown in March 2020. --- Send in a voice message: https://podcasters.spotify.com/pod/show/what-the-cf-pod/message…
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In the latest CF Podcast, Anthony Esposito, aka Espo 2, shares why he loves fitness and nutrition. While he doesn’t have CF himself, he wants to inspire all people to improve their health with his Youtube channel – and to convince people that burpees are the best! This video podcast was made possible through an unrestricted educational grant from G…
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“I love ice hockey because it really opens up my life and makes me stop thinking about cystic fibrosis and worrying about my health.” Meet Reilly Hoagland! Reilly was diagnosed at 4-years-old with cystic fibrosis, but has never let it stop him from living life the way he wants. Reilly is an honor roll student who loves sports and travels up and dow…
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Cystic Fibrosis Podcast 241 - COVID - 19 – A Terrible Virus & The Wonderful Humans Who Cared For Me
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“I’ve always felt gratitude for the hospital staff, but this was over and above. We all know how contagious this is, and they knew that pretty early on. And yet, their job is to care for people and they did it regardless of their own risk. They did it with such kindness and caring.” Jerry caught up with Kay W. to talk about her experience of living…
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In Jerry Cahill’s latest podcast, he spoke with 30-year-old Enid Katz, who was diagnosed with CF when she was 3. Enid’s passion in life is horses – which motivates her to stay healthy, active, and fit, even when she isn’t feeling her best. She shares what it’s like for her when she has a pulmonary exacerbation, how it can feel defeating to have to …
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Jerry Cahill spoke with Dr. Kelsey Finn about her book, “Having Cystic Fibrosis is a lot like being a Super Hero,” which relays information about CF so that kids and parents have a launching pad for more serious conversations. Dr. Finn’s goal is to support parents and give them the resources that they need to empower and educate their kids. She bel…
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“I would tell a caregiver or a spouse of someone with CF that – all of those things you are feeling, the fatigue, the anger, the resentment, all of that is okay because we’ve all gone through that. It’s also really important for you, the caregiver, to take care of yourself.” Jerry sat down with Tom Kaminski, his wife of 27 years, Lynn, and their so…
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“I would recommend that anyone with CF who can physically get up and move, to get up and move. I have found that exercise has changed my life completely, and without it, I don’t know where I would be at this point.”Meet Scott Marraffa, a 25-year-old who is living with cystic fibrosis AND competed on American Ninja Warrior! Scott’s parents kept him …
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“Everyone deserves that same realistic hope for a deep breath and for a future. And the work of Emily’s Entourage is focused on achieving that for every single person so no one with CF is left behind.” Jerry sat down – virtually – with Emily Kramer Golinkoff in his latest podcast to discuss the incredible work that she does with her 501(c)3, Emily’…
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In part 2 of Managing Your Life as a Teenager, Jerry sits down with Sean Randles… 6 years after their first podcast. Today, Sean is 15-years-old, runs track, and played freshman basketball. He is also a positive social media influencer, spending most of his time recording Tik Tok dances and sharing his life on Instagram – always in a positive way! …
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--- Send in a voice message: https://podcasters.spotify.com/pod/show/what-the-cf-pod/message
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Jerry caught up with 17-year-old Colin Randles in his latest podcast. Colin, a Junior honors student, golfs, plays JV basketball, and rows crew. His brother Sean, who also has cystic fibrosis, is his biggest support system, and they do as much as they can together. Tune in to hear more about Colin and to see a flashback to his original appearance o…
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“I can fight alone, but we can win together.”Last week, we met Eric Schandel… and this week Jerry sat down with his wife, Ashley! In the latest CF Podcast, Ashley shares a little about herself and what it was like when her daughter Remi Monroe was diagnosed with cystic fibrosis. She also talks about charity runs, the silver lining of having a child…
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All parents worry about their children – but parents of kids with cystic fibrosis have additional stressors and concerns. In the latest CF podcast, Eric Schandel sat down with Jerry Cahill to share his experience of being a CF dad – to Remi, who is now almost two.At the time of Remi’s diagnosis, Eric was alone at work when he got the news, and he d…
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In Jerry’s latest CF Unmasked podcast, he sits down with Greg Love for an uncensored look at what it’s like growing up with two brothers with cystic fibrosis. From witnessing countless pulmonary exacerbations to feeling guilty about being healthy, Greg shares his experiences openly and honestly. Within his own family, Greg saw two sides of CF – his…
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“I am not defined by my disease. I have CF, but I am not CF. I can do what everyone else can do; I just might have to do it a little bit different. I might have to add in some treatments during the day. But I am strong. I can do it all.”Christie Fogelstrom joined Jerry on his latest CF Podcast to discuss traveling frequently for work while living w…
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In the latest CF Podcast, Jerry Cahill interviewed James Colligan, Director of Sales and Business Development, and Danielle Maffei, Lead CF Pharmacist, at Total Care RX, a specialty pharmacy that focuses on lifting the financial burden of patients living with cystic fibrosis. Danielle and James discuss their focus of educating CF patients about the…
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Welcome To The First Educational Episode! Diving deep into what CF actually is and how people are tested and diagnosed. Enjoy! :) Instagram is @jodicocker , please don’t hesitate to let me know of topics you would like to me cover
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Just a quick introduction into my Cystic Fibrosis podcast “Fearless With A Fearful Illness” and what I have planned for it. If you have CF or want to know more about daily thoughts, struggles, experiences of general life then watch out for the next episode coming soon. Enjoy :)
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This week on Breathe In, Tiffany is on her own again while Gunnar battles his way through final exams. Tiffany is joined by a new voice on the podcast, Holly Seay, 24, from Georgia, a newlywed with CF. Holly takes us through her life with CF and how she met her now husband. Prior to their wedding, Holly and her now husband never lived together. Hol…
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On this episode of Breathe In, Gunnar takes the day off and Tiffany takes over with a returning guest, Audrey Kostelec, 23 from Washington State. You may remember Audrey from the emergency podcast we had on FaceBook Live in March. This time we talk about Audrey and her CF journey. Audrey explains how she was misdiagnosed and has recently been place…
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A mere few days following the FDA's approval of Trikafta, cystic fibrosis patients across the United States began dosing. This week's podcast looks back at Gunnar's time in the triple combo study. Think of this podcast as a follow to Gunnar's blog over on GunnarEsiason.com. Gunnar talks about both the immediate and long term affects of having been …
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Gunnar and Tiffany welcome back the podcast after a brief (unplanned!) hiatus. Tiffany announces that she started working a new job and has begun living out her goal of working full time. Gunnar talks about fighting through a round a midterms in the first quarter MBA term. The duo chat about getting their flu shots, why CF community members must ad…
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After a few weeks off, Gunnar and Tiffany return to the podcast with Gunnar's girlfriend, Darcy. This time, though, Darcy puts on her social worker hat and takes the podcast through a clinical lens into the world of self care. It's established early on in the podcast that self care is a bit of a misnomer these days because of Instagram, while Darcy…
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Tiffany is joined by Ashlee Terwilliger, 35, with cystic fibrosis and a double lung transplant survivor. The two talk about Ashlee's life growing up and how becoming a teacher affected her health and how she handled all the germs. As her health declined, she became pregnant and Ashlee takes us through being pregnant and labor with a low lung functi…
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