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Episode 18: CFNZ Lisa Burns
Manage episode 372513930 series 2902127
Contenuto fornito da What The CF! A Cystic Fibrosis Podcast. Tutti i contenuti dei podcast, inclusi episodi, grafica e descrizioni dei podcast, vengono caricati e forniti direttamente da What The CF! A Cystic Fibrosis Podcast o dal partner della piattaforma podcast. Se ritieni che qualcuno stia utilizzando la tua opera protetta da copyright senza la tua autorizzazione, puoi seguire la procedura descritta qui https://it.player.fm/legal.
Ingrid chats to CFNZ Chief Executive, Lisa Burns. They discuss what CFNZ does for CFers and their families throughout their lives and what the organisation's plans are for the future to make sure no one is left behind now that Trikafta is funded. There's still no cure, and not everyone can take Trikafta, so CFNZ want all in the community to know that they are there for everyone. Listen to end to hear an exclusive fundraiser coming up from Lisa for Sweatember!
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