))
Talking Chorea Blues - Amanda Schieber
Manage episode 324599654 series 3220748
Contenuto fornito da paul briggs and Paul briggs. Tutti i contenuti dei podcast, inclusi episodi, grafica e descrizioni dei podcast, vengono caricati e forniti direttamente da paul briggs and Paul briggs o dal partner della piattaforma podcast. Se ritieni che qualcuno stia utilizzando la tua opera protetta da copyright senza la tua autorizzazione, puoi seguire la procedura descritta qui https://it.player.fm/legal.
This special edition of the Mixtape Tales podcast is a discussion of Huntington's Disease with my cousin, Amanda. She talks about the testing process, why advocacy is crucial, and shares her -- OUR -- family story.
I am titling these episodes "Talking Chorea Blues" in honor of an unrecorded Woody Guthrie song related to his illness. In case you were wondering where the title came from :)
If you want to tell your family's HD story, shoot me an email pbriggs1977@gmail.com and we will set up a time to talk. I can not thank Amanda enough for taking the time to do this, and I hope you find her episode informative and helpful.
31 episodi
Condividi
