A podcast dedicated to Long Covid. Noreen Jameel and Emily Kate Stephens talk to fellow sufferers, doctors and experts searching for answers about this new, debilitating post-viral condition. So if you are one of the millions suffering from, or interested in, this new condition - tune in to our weekly podcast.
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The Covid-19 pandemic is a distant memory for many people, and it is not given much news coverage. Yet there is a growing number of people who have reported that symptoms never left them after contracting the virus; many of them have had these symptoms for years. The Office of National Statistics estimates that over 2 million Britons have Long COVID-19. You may have it or know somebody who is struggling with it. The number worldwide is unknown. My name is Paul, and long Covid has debilitated ...
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The Pain Speak podcast is presented by Dr Deepak Ravindran, a full time NHS Consultant specialising in Pain, Anaesthesia, MSK and Lifestyle Medicine. Dr Ravindran is also the author of the book, 'The Pain Free Mindset'. In this podcast Dr Ravindran explores all things related to pain including physical, emotional and social issues. He also looks at the neuroscience of pain and the fantastic advances which have been made in this area of medicine. He also discusses the business of healthcare a ...
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Thank you so much for your messages! Today, I felt like I had enough energy to go through some of them and record them for this special 'interlude'. Please continue to share what your life is like living with Long Covid, and I will do these catch-up interludes regularly. Watch out for the online forum to complement this podcast, which is launching …
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In this episode, I talk about sleep and how Long Covid affects it, plus some of the things I have found helpful. I give an update on a few products that seem to be working (links below) along with a negative experience I encountered whilst advertising the podcast. Herbal Health, who produce the fabulous 'Ninja Balm' in both regular strength and 'su…
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I recorded this whilst still very weary after a holiday with the family. I reflect on my week away and the highs and lows of managing in a different environment. If you find this podcast helpful, do let me know. You can message me via the link below. Send us a textDi Paul Clarke
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I explore the summer holidays and the challenges of planning things with the family. Also, after being told my symptoms might now be permanent I try and explain how I am beginning to come to terms with this. Oh, and an update on a supplement that seems to be working a little bit! Send us a textDi Paul Clarke
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I talk with my wife, Rachel, about visiting a local festival using mobility aids. We also chat about a recent occupational health review. We also chat through how by being honest, we can manage my condition together. Send us a textDi Paul Clarke
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In this episode I explore my experienes of attempting to work with Long Covid and the concequences. Hank the Cavalier King Charles makes a contribution, and even barked at himself upon playback! Send us a text
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In this episode, I talk about how Long Covid affects my mental health and the things that I do to help. Maisie the dog makes a brief appearance. I found this a difficult episode to record, as I was feeling down at the time and it is a very emotional topic. As always though, I decided to present it 'as is' so that you can at least get a feel of how …
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I want this podcast to show the highs and lows of living with Long Covid. Today is a low, and I decided to record this short audio to try and describe it. Reach out : lifewithlongcovid@icloud.com Send us a text
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In this episode, I talk about my journey of introducing supplements and how it eventually led me to realise that I was looking for answers in the wrong place. I mention a few that I have tried; Krill Oil (for the ultimate in fishy breath!) NADH (warning: massive tablets) Vitamins C, D, B12 CBD Oil, balms and capsules (and chocolate, gummies,
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In this episode, I talk about my experiences with various medical professionals and their reactions to my illness. I recorded this whilst having a tired and emotional day. I thought about re-recording it, but in the end, I believe it is important that you hear me on the not-so-good days as well. Let me know your experiences, email: lifewithlongcovi…
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My plan was to do a short walk and record how I was feeling. In reality, it turned into a 'wheel' and talk with my wife, Rachel! Join us on a Sunday afternoon wheel/walk as we discuss my use of a wheelchair, people's perceptions of my illness and how Rachel has had to change her life. Send us a text
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Living with Long COVID means constantly feeling tired, but it is likely that other people won't understand. In this episode, I delve deeper into fatigue and some of the coping strategies I have developed along the way. It would be great to hear from you if you have any tips or comments, email me: lifewithlongcovid@icloud.com For more information ab…
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Long Covid is hard to understand at the best of times, so no wonder people do not know how to respond to our illness. In this episode, I talk about how I deal (or find it hard to deal) with comments on our disability. Guest starring Maisie the Pomeranian, who barks at the wind in the background! Send us a text…
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Episode 78: Benjamin Krishna - Interferon Gamma
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Dr Benjamin Krishna and the Virology & Immunology team at Cambridge University have identified a protein, elevated in the blood of Long Covid patients, that could act as a potential biomarker for the condition. This week, we spoke to Dr Krishna about their study, published in Science, which sampled the blood of Long Covid patients across several ye…
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In this episode, Paul introduces himself and the series. Send us a textDi Paul Ian Clarke
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Episode 77: Dr Theoharis Theoharides - The Mast Cell Master
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Dr Theoharis Theoharides, aka “The Mast Cell Master”, has been exploring the world of Mast Cells, their influence on our bodily functions, neurology and genetic make up, for over half a century. The Director of the Center of Excellence for Neuroinflammation Research and Professor at the Institute for Neuro-Immune Medicine at Nova Southeastern Unive…
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Episode 76: Conor Browne - biorisk consultant
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Conor Browne, an independent Biorisk Consultant, analyses biosecurity risks for governmental bodies, commercial enterprises and NGOs, aiding with business continuity, forecasting and policy. He understood that Covid-19 was airborne in February 2020 but, he says, “it’s the first message that sticks”. In this week’s episode he discusses how our gover…
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David Cutler, Professor of Applied Economics at Harvard University, has spent his career assessing the economics of healthcare. Over the past four years he has applied his skills to assessing the cost of Covid, and subsequently Long Covid, on the U.S. economy. His original analysis, published in JAMA in 2022, suggested that Long Covid would cost th…
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Episode 74: Nancy Klimas M.D. - Neuroimmunology
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Dr Nancy Klimas, Director of the Institute for Neuro-Immune Medicine, Nova Southeastern University, is an immunologist internationally renowned for her work in multi-symptom illnesses. In this week’s episode she explains her work, from HIV through ME/CFS and Gulf War Syndrome, that has led to her having insight and an amazing team to channel effort…
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Dr Rob Wüst, Assistant Professor in the Faculty of Movement and Behaviour Sciences, is an expert cardiac and skeletal muscle metabolism and mitochondrial function. He and the team at Vrije Universiteit, Amsterdam, published the “PEM study” in Nature Communications, which investigated the muscular changes in Long Covid patients who experience post-e…
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Dr Thomas Chelimsky, Professor of Neurology and Director of VCU’s autonomic laboratory, is a specialist in autonomic dysfunction and a vocal advocate for considering the mind and body as one cohesive system. He, along with his team at the VCU clinic, take a unique brain-body approach to treating Long Covid patients, with success. In this week’s epi…
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Episode 71: Dr Andrew Klein - Iron and B12 deficiency
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Dr Andrew Klein, an anaesthetist at the Royal Papworth Hospital Cambridge, runs the Cambridge Iron Clinic where he treats people with Iron and B12 deficiencies. Since the start of Covid he has seen an increase in people with these deficiencies, many of whom have been diagnosed with Long Covid. In this episode Dr Klein talks us through the overlappi…
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Physiatrist Benjamin Abramoff, M.D. is the Director and Co-founder of the Post Covid Assessment and Recovery Clinic at the University of Pennsylvania, Philadelphia. An Assistant Professor in Physical Medicine and Rehabilition, Abramoff used his expertise to co-author the study, published in Cell, that found that serotonin depletion is prevalent in …
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Episode 69: Prof. Tim Henrich - Viral persistence and T cell dysregulation
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Tim Henrich is a Professor of Medicine and expert in infectious diseases, focused on chronic viral infections at the University of California, San Francisco. He is another member of the titan Long Covid research team who have tracked patients since the beginning of the pandemic (LIINC study) and are making roads into understanding the mechanism of …
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A supplement to Episode 68 - Consultant Neurologist Steven Allder of Re:Cognition Health explains what tinnitus is and why we are experiencing it in Long Covid. Living with Long Covid? How was your week? Website - https://www.tlcsessions.net/ Twitter - @SessionsTlc https://twitter.com/sessionstlc Insta - @tlcsessions https://www.instagram.com/tlcse…
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A supplement to Episode 68 - Consultant Neurologist Steven Allder of Re:Cognition Health discusses the way that injury to the brain causes anxiety and depression in Traumatic Brain Injury and could explain some of the mental health impact of Long Covid. Living with Long Covid? How was your week? Website - https://www.tlcsessions.net/ Twitter - @Ses…
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Consultant Neurologist Steven Allder of Re:Cognition Health has applied his wealth of experience investigating Traumatic Brain Injury (TBI) and Functional Neurological Disorder (FND) to understanding the impact of Long Covid on the brain. In this week’s conversation we discuss inflammation of the brain of Long Covid patients which is visible using …
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Episode 67: Prof. Andrew Shaw – Antibody gap
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Professor Andrew Shaw, University of Exeter, believes that he has devised a diagnostic test for Long Covid. His company, Attomarker, have developed a test which can reveal a gap in a patient’s antibody spectrum – their response to acute SARS-COV2 from a finger prick of blood. This gap, he says, has lead to a viral residue that causes the chronic sy…
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Imperial College Professor of Immunology, Danny Altmann recently published “The immunology of long COVID”, a fantastically comprehensive overview in Nature Reviews Immunology. In this week’s episode Altmann, to whom we first spoke in the summer of 2021, talks us through some of the highlights of the work he's reviewed - serotonin depletion, gut bio…
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Episode 65: Dr. Amy Proal - PolyBio
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Dr. Amy Proal is the President and Research Director of PolyBio Research Foundation, a non-profit organisation that brings together some of the brightest scientific minds to research how infection-associated chronic conditions are studied, diagnosed and treated. Their work into Long Covid is bringing together some of the leaders in the field to acc…
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Episode 64: Michael Peluso, M.D. – Viral reservoirs and Monoclonal Antibody treatment trial
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Michael Peluso M.D., an HIV and infectious disease specialist at UCSF, has been studying Long Covid patients since April 2020 (LIINC Study). This, along with his history of working with HIV and other viruses, has given him the knowledge and methods to make some break-throughs into Long Covid pathogenesis, effects and, potentially, treatments. He, a…
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Eric Topol must be one of the leading voices in Long Covid advocacy. Cardiologist, scientist, author, editor-in-chief of Medscape, and founder of the Scripps Research Translational Institute, Topol has written about Long Covid in publications from The Lancet and Nature, to The Washington Post. As a clinician a large proportion of his patients are n…
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Harlan Krumholtz, cardiologist and Professor of Medicine at Yale University, is attempting to move the needle when it comes to patient-centric care in Long Covid and beyond. Working closely with immunologist Akiko Iwasaki, Krumholz not only looks at the heart when it comes to his research into Long Covid. Together this Long Covid power couple are t…
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Credited as being the founder of functional medicine, Dr Leo Galland has spent the past 40 years trying to create a patient-centred version of healthcare. Using pharmaceuticals, supplements, lifestyle and complimentary therapies he has drawn on his vast knowledge of patients and holistic healing, to create a comprehensive protocol for Long Covid pa…
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Episode 60: Research-Aid Networks – all about the acid-base
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Researcher Vicky van der Togt and virologist Dr Jeremy Rossman have spent the past 2.5 years trying to help Long Covid patients and research via their organisation Research-Aid Networks. Their latest paper, published in Frontiers, hypothesises that it is an acid-base disruption that drives the symptomatology of Long Covid. In this week's episode we…
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Dr Wes Ely, a pulmonary and critical care doctor, has built a remarkable resource for Long Covid sufferers within the Critical Illness, Brain Dysfunction and Survivorship Center at Vanderbilt University Medical Center in Nashville, Tennessee, of which he is co-director. A professor, using his knowledge of his clinical knowledge and his extensive re…
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Episode 58: **Exclusive** Breakthrough Biomarker?
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Molecular Virologist, Bhupesh Prusty, promised to reveal more when we last spoke, four weeks ago. Here he presents what he believes to be a biomarker for Long Covid, explaining the mechanism, its similarity to ME/CFS, what his research and findings have proven, and how we might take this research forward to develop further understanding and treatme…
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Lavanya Visvabharathy, a T cell immunologist at Northwestern University, Chicago, has led extensive studies into Long Covid, but we learned that some of those studies, despite their merit and rigour, were proving hard to publish in top tier medical journals. In this week's episode we lift the lid on the process of scientific publishing, talking thr…
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Dr Jim Jackson, research professor of Medicine and Psychiatry at Vanderbilt University Medical Centre, does not believe that Long Covid is all in your mind, but he has found that treating the brain, as if it has a brain injury, can help Long Covid recovery. In this week’s episode Dr Jackson explains his clinical experience of the neurological impac…
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Episode 55: Dr Raouf Gharbo - HRV, breathing and sleep
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Dr Raouf (Ron) Gharbo has spent many years treating those with brain injury and autonomic disorders using Heart Rate Variability (HRV) metrics. Physical medicine and rehabilitation specialist, and Director of Autonomic Rehabilitation at VMU Health, Dr Gharbo this week explains the sympathetic and parasympathetic nervous systems, the metrics he uses…
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Dr Bhupesh Prusty believes that he has found 'the switch'. A molecular virologist from the University of Würzburg, Germany, he has turned his work looking at ME/CFS to look at Long Covid, and believes that viral reactivation in both diseases could hold the key. It’s this viral reactivation that, rather than causing a detectable elevation of somethi…
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In this week's episode we receive no-nonsense, practical advice from Prof. Jack Lambert, a consultant in infectious diseases at the Mater Hospital in Dublin. He has been monitoring long term recovery following COVID-19 since he saw the first patients in Ireland in March 2020. He has used his knowledge of chronic conditions caused by other infectiou…
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If you’re looking for an overview of all of the research into Long Covid, this Nature review, undertaken by Patient Led Research Collaborative (PLRC) under the guidance of the cardiologist Dr Eric Topol, is a great place to start. A collation of the findings from almost 300 biomedical research papers on Long Covid, it sets out the major findings, m…
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Akiko Iwasaki, a Professor of Immunobiology and Molecular, Cellular, and Developmental Biology at Yale University, with a particular interest in mucosal infection, is making gains in Long Covid research. Her work with Dr David Putrino (interviewed in Episode 47) revealed several findings that move us closer to identifying a bio-marker; her work wit…
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Dr Ziyad Al-Aly is chief of research and development at the Veteran Affairs St. Louis healthcare system and a clinical epidemiologist at Washington University in St. Louis. Direct access to both Long Covid patients and the Veteran Affairs health care records enables Al-Aly to have led some of the most impactful research and studies into Long Covid.…
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Dr Benjamin Natelson, professor of neurology and director of the Pain and Fatigue Study Centre at Mount Sinai, has been studying the mechanisms, effects and management of chronic fatigue for almost half a century. In this week’s conversation he explains how he has used his knowledge to study and treat those with Long Covid. The recipient of multipl…
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What if there were an activity tracking app designed to monitor and aid recovery from chronic illness, instead of pushing fitness goals? That is exactly what Long Covid sufferer Harry Leeming conceived with his team at Visible. Together they have created an activity tracking platform specifically for Long Covid and ME / CFS sufferers to enable them…
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This week, we spoke to Mount Sinai neuroscientist and physical therapist Dr. David Putrino about his latest study on 215 patients. A collaboration between Mount Sinai and Yale University in the U.S., Putrino worked with immunologist Akiko Iwasaki to see if they could find any ‘Distinguishing features of Long COVID identified through immune profilin…
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Dr David Strain is a titan in the Long Covid research and clinical field. With the ability to boil down complex medical theory and research into very comprehensible explanations, Dr Strain explains HRV and how we can use it to monitor and potentially manage our symptoms. He talks us through vagal tone, the impact of vaccines and COVID-19 strains on…
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Episode 45: Amiad Abrahams - Psychology and Mindfulness
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Amiad Abrahams, a Health Psychologist, the Deputy Lead for North West London's Long Covid Psychology service, understands the effect that the mind and Mindfulness can have on patients with acute and chronic conditions. Since mid 2020 he has been leading “COMFORT” – a group Mindfulness course offered by St Mary’s Hospital. In this week’s episode he …
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