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Let's Think Zebras: Understanding Rare Disease Through the Lives of Those it Affects

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Manage episode 399443675 series 3529093
Contenuto fornito da Havas Medical Anthropology. Tutti i contenuti dei podcast, inclusi episodi, grafica e descrizioni dei podcast, vengono caricati e forniti direttamente da Havas Medical Anthropology o dal partner della piattaforma podcast. Se ritieni che qualcuno stia utilizzando la tua opera protetta da copyright senza la tua autorizzazione, puoi seguire la procedura descritta qui https://it.player.fm/legal.

A rare disease diagnosis is the beginning of a journey of unknowns. From an HCPs ability to treat, to a caregivers' emotional burden, to a patient's sense of identity, there are a variety of factors that remain uncertain or unclear which makeup the unique challenge of having a rare disease.
Despite the challenge, people living with rare disease persevere and form communities - real communities - they share advice and relatable experiences while staying emotionally invested in each other's success. They've laid the groundwork. Advancements in the treatment of rare disease are both transformative today and tomorrow. Now, we must figure out how we fit in to creating that success.
Join us for this special edition as we begin preparing for Rare Disease Day (February 29) with Afshan Rizvi Hussain, Havas' own Global Rare Disease Lead.

If you have any questions, feedback, or just want to say hi, email us at medicalanthropology@havas.com
Check out Breaking the Code on LinkedIn: https://www.linkedin.com/company/breaking-the-code-havas-health-and-you-podcast

  continue reading

40 episodi

Artwork
iconCondividi
 
Manage episode 399443675 series 3529093
Contenuto fornito da Havas Medical Anthropology. Tutti i contenuti dei podcast, inclusi episodi, grafica e descrizioni dei podcast, vengono caricati e forniti direttamente da Havas Medical Anthropology o dal partner della piattaforma podcast. Se ritieni che qualcuno stia utilizzando la tua opera protetta da copyright senza la tua autorizzazione, puoi seguire la procedura descritta qui https://it.player.fm/legal.

A rare disease diagnosis is the beginning of a journey of unknowns. From an HCPs ability to treat, to a caregivers' emotional burden, to a patient's sense of identity, there are a variety of factors that remain uncertain or unclear which makeup the unique challenge of having a rare disease.
Despite the challenge, people living with rare disease persevere and form communities - real communities - they share advice and relatable experiences while staying emotionally invested in each other's success. They've laid the groundwork. Advancements in the treatment of rare disease are both transformative today and tomorrow. Now, we must figure out how we fit in to creating that success.
Join us for this special edition as we begin preparing for Rare Disease Day (February 29) with Afshan Rizvi Hussain, Havas' own Global Rare Disease Lead.

If you have any questions, feedback, or just want to say hi, email us at medicalanthropology@havas.com
Check out Breaking the Code on LinkedIn: https://www.linkedin.com/company/breaking-the-code-havas-health-and-you-podcast

  continue reading

40 episodi

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