LITM Episode 96, Jessica Caulder - Hydrocephalus Association

Lost in the Midlands

Jessica Caulder - Hydrocephalus Association
“When Emma was first diagnosed, it was tough because we had never heard about this condition and had no support system outside of immediate family. Emma felt alone since she didn’t know anyone else with hydrocephalus. Eventually we discovered the Hydrocephalus Association and they helped us, giving us resources and connecting us to local families facing the same challenges,” explained Jessica. “Handing your baby over to the neurosurgeon for brain surgeries never gets easier, but through the walk we know we’re helping to make things better for our child and others living with hydrocephalus.”
Founded in 1983 by the parents of children with hydrocephalus, the Hydrocephalus Association (HA) is the nation’s largest and most widely respected organization dedicated to hydrocephalus. We fund high-impact research, provide support and educational resources for patients and caregivers, and advocate on behalf of the hydrocephalus community on key policies and legislation. Since 2009, HA has invested over $14 million in cutting-edge research, making us the largest non-profit, non-governmental funder of hydrocephalus research in the United States. Our Mission HA's mission is to find a cure for hydrocephalus and improve the lives of those impacted by the condition.
Our Vision Our vision is a world without hydrocephalus.
https://www.hydroassoc.org/
Call: [phone]
Email: [e-mail] Monday – Friday
Lost in the Midlands Podcast
Hosted by Wright Brennan
Sponsored by Seawright Roofing
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