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Exploring Families' Needs
Manage episode 312495032 series 3236617
Contenuto fornito da David Cunnington and SCN2A Australia. Tutti i contenuti dei podcast, inclusi episodi, grafica e descrizioni dei podcast, vengono caricati e forniti direttamente da David Cunnington and SCN2A Australia o dal partner della piattaforma podcast. Se ritieni che qualcuno stia utilizzando la tua opera protetta da copyright senza la tua autorizzazione, puoi seguire la procedura descritta qui https://it.player.fm/legal.
Families can find it challenging dealing with the healthcare system when children with genetic epilepsy and developmental epileptic encephalopathies are unwell. To help identify needs and plan towards improving services, Genetic Epilepsy Team Australia convened a roundtable including families, clinicians and researchers. In this episode Kris Pierce discusses the outcomes of the roundtable and plans for the future.
Hosted by Kris Pierce and David Cunnington, parents of Will, who has SCN2A.
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Links
- Genetic Epilepsy Team Australia
- Genetic Epilepsy Clinics - podcast episode
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