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Quality of Life Measures
Manage episode 312495020 series 3236617
Contenuto fornito da David Cunnington and SCN2A Australia. Tutti i contenuti dei podcast, inclusi episodi, grafica e descrizioni dei podcast, vengono caricati e forniti direttamente da David Cunnington and SCN2A Australia o dal partner della piattaforma podcast. Se ritieni che qualcuno stia utilizzando la tua opera protetta da copyright senza la tua autorizzazione, puoi seguire la procedura descritta qui https://it.player.fm/legal.
Measuring quality of life is important, particularly in clinical trials, to capture the broader impacts of treatment beyond just measuring seizures.
To help understand what outcome measures are and why they are important to spoke to Dr Jenny Downs, Program Head of Disability Research at the Telethon Kids Institute in Perth.
You can listen to and subscribe to the SCN2A Insights podcast via Apple Podcasts, Spotify, and Google Podcasts or in your podcast app.
Links:
- Information on Quality of Life Inventory-Disability (QI-Disability)
- Validation study of QI-Disability
- Want to help developing quality of life measures for children with genetic epilepsy?
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