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041 From Muscles to Bones: An Unstoppable Genetic Disorder
Manage episode 395468282 series 3313372
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In this episode, we explore the story of Joe Sooch, who shares his heartbreaking story of living with a rare condition called "Fibrodysplasia Ossificans Progressiva" (FOP), where the body’s muscles slowly and progressively turn into bones. In contrast to our previous episodes this time it's impossible to overcome this condition but still Joe offers a glimpse into his extraordinary life, showcasing unwavering strength in the face of adversity. We delve deep into this story from what it means medically, all the complications that come with FOP, and his general view on life; his story brings to light the indomitable spirit that defines Joe's journey with FOP.
Link to Joe's podcast: Spotify
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Producer & Host: Jennica Sadhwani
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